Pineal Gland Cyst

[Guest]

My wife Paula was diagnosed with a Pineal Gland Cyst back in September 2008. We were referred to a Neurologist in "The Royal Victoria Hospital" Belfast.This doctor was really UNHELPFUL and told Paula that this was a common finding now with the use of CAT Scan and MRI.His very words to this day are "simple Pineal Cyst." This was totally unacceptable for us as Paula was in chronic pain with cluster headaches and sickness and fatigue that has never abated since September 2008. This Neurologist prescribed Topomax for siezures,prochlaperazine for balance,Diazepam for anxiety and muscle relaxent,Prozac for mood,Diclofenac for inflammation,Amytriptaline for pain,Morphine for pain {Targinact},Furosemide for fluid retention and recently Tegretol for fits and Lyrica for mood. I forgot to mention Valoid and Omeprazol for sickness and stomach.


Even now as I read the list of medication I am staggered. 19 tablets morning and night and about 8 during wakeing hours!!!


I forgot to mention that my wife was a very fit and healthy 33 year old mother,wife and business owner,with no real medical history of note.


This "INCIDENTAL CYST" has robbed Paula of her life. She is now totally disabled with bouts of rage,blackouts and chronic depression.


I really did not think that any Doctor, never mind an emminent Doctor such as Stanley Hawkins would leave an another human being in such agonizing pain.


I have had my eyes opened with regard to Neurologists and the medical field in general. I have scoured the internet with hundreds of hours of research regarding the Pineal Gland and the successess that "OTHER" countries have had in treating this cyst. 98% success rate with the removal of this cyst and almost 100% sure that there was no recurrance of this cyst.


Any how please do not give up your search,there are surgeons that successfully operate for this cyst. We have a meeting with a "NEW NEUROSURGEON" on Thursday 27/05/10 and we are both very optimistic about this.


We are from Northern Ireland and we do not have the medical equipment here to treat this condition and we have both come to the agreement that alot of Neurologists do not like to operate on this cyst because of where it is and because they do not like to fail. This is a very HUMAN problem but one that you must remember. Do not take NO for an answer....there are wonderful,brave surgeons who are willing to treat people with this cyst.


Your daughters cyst is very large like Paulas which is 1.7cm x 1cm x 1.5cm. The National Organization of Rare Diseases states that when a Pineal Gland Cyst is OVER .5cm, HALF A CENTIMETRE, it is considered RARE!!!! God bless your daughter and You as I know what you are going through. I have lost the wife I loved and knew for 20 years,the kids have lost their mother and Paula has lost the last three years of her life...But there is light now at the end of the tunnel.


Please keep your chin up and REMEMBER do not let the doctors convince you that nothing can be done.I really think that some of them think they have the power of life and death over us ordinary folk and they have been talking down to us for 3 years, but no more. My email address is charliek3@sky.com. I would love to hear of any treatment offered to your daughter or indeed any news from people with a Pineal Gland Cyst. Good luck to everyone and thanks to sites such as this we can all help each other with encouragement and information


Related Page: http://www.Brain-Surgery.com/pineal.html

[ng007]

I'm 39 years old and have been dealing with problems since June 2009.
I just found out that I have a 7mm Pineal Cyst. Well on 05/21/2010 my husband read the reports from my last MRI (3rd) and told me. We immediately asked my Dr, what's a Pineal Cyst and why we were not informed of such findings?
I have been dealing with dizziness and Lightheadedness, eye/vision problems, tingling and weakness on my left side, I'm extremely tired all day (I sleep very well at night 7-9hrs,) low blood pressure/Hypotension, I get exhausted after any activity, anxiety and sometimes anxiety/panic attacks.
The Drs do not think I should be worry about this, but I'm.
08/08/2009 1st MRI states: Tiny Pineal Cyst incidental.
11/02/2009 an (ENG) Electronystagmography test was performed and results were ABNORMAL on the part of the test that evaluates the movement of the eyes as they follow a moving target.
My ENT Dr J Kahn was very worry and told me to go see my Neurologist immediately since this part of the test indicates a neurological problem (central nervous system.)
11/16/2009 (ENG) Electronystagmographywas test performed again to double check and results were abnormal once again.
11/28/09 2nd MRI states: A 7mm benign-appearing Pineal Cyst is incidentally noted.
05/15/2010 3rd MRI states: There is again a Subcentimeter Pineal Cyst, unchanged.
On 12/01/2009 I was diagnose with PCOS (Polycystic Ovary Syndrome) by my Endocrinologist. But he also stated that PCOS does not explained any of my other symptoms.
I’m still looking for answers...
Here is some info I found, I hope it can be helpful:
http://kelsy.pledgepage.org/
http://www.nel.edu/pdf_/24_6/NEL240603A01_Mandera_.pdf

[traceyb]

I just had an MRI done about 2 weeks ago and they found a .7mm pineal cyst but I was told it was nothing to worry about.  I went to my family doctor because for months I have had tingling on the left side of my face and in my ear.  I have lost some feeling on the left side of my face also.  I have horrible headaces and have been put on topamax which does help but I still get them from time to to time.  They are sending me to a neurologist in October because they can't figure out what is causing the problem. I don't think they are going to consider the pineal cyst as the cause but I think it maybe.  I have had fatigue, muscle aches, chronic headaches for several years. It is so hard for me to function like this but I have to work and I try not to let my husband and kids know how bad I feel but it is getting harder each day for me.  I live in a small town and the doctors here don't seem to listen to you...I don't know if it is because they have so many people come in all the time complaining just to get drugs and think everyone it that way or what but I don't want to be on more drugs. If anything I don't want to take the medication I am on currently they have me on cymbalta, topamax, corgard for my high blood pressure and zocor.  I know .7mm is really small and consider nothing to be worried about but can't it still cause problems for some people?