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September 07, 2010, 12:55:32 PM *
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Author Topic: My 7 week old son has an AVM on his Brain Stem  (Read 185 times)
Guest
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« on: July 12, 2010, 10:41:34 AM »

I want to know if there is something that can be done to fix it? The doctors are not being straight forward about it and are not telling me anything that I want to know! At 10 days old it ruptured and he had to be hospitalized. I really need some kind of information. I am standing in the dark here and my son means so much to me and I want to know every option we have to help him?!


Related Page: http://www.Brain-Surgery.com/bsicavm.html
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rhiannon
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« Reply #1 on: July 26, 2010, 07:56:53 PM »

Hi my name is Rhiannon .I am so very sorry to hear of your childs condition.I dont know that I have any advice to give you ,as I am searching for answers myself.My son died on 07-02-2010 at 5:03p.m at the age of 4 1/2 years, in one of the best childrens hosp. in Southern California.He died from an AVM. We did not know that he had this condition until it was too late. He went in July 1 to have his tonsills removed. I guess the surgery caused a stress on his brain. I do not have medical answers but I do know your pain.I am here if you need someone to talk to. I am so sorry that there is another family affected by this horrible disease. I will pray for you and your family.Please any answers as to the cause please email me,as I am in the dark about the causes.
Many Prayers,
Rhiannon
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gmnvelasco@yahoo.com
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« Reply #2 on: July 27, 2010, 02:07:04 AM »

HI!My name is Gem.My heart is with you rigth now.Don't loss hope GOD is great he will do everything.I felt the samething when my 2 month old precious daughter was hospitalized.She had the same situition with your son.Even myself is still searching for an answer.I even ask the doctors what causes that and why my daughter.They said, it may be congenital or genetic or they dont know.She's my first baby and she did not survived.I'll pray for ur son's recovery..GOD BLESS 
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